{"id":697,"date":"2023-03-07T09:47:45","date_gmt":"2023-03-07T09:47:45","guid":{"rendered":"https:\/\/socio-bee.eu\/?page_id=697"},"modified":"2024-06-19T09:47:15","modified_gmt":"2024-06-19T08:47:15","slug":"the-knowledge-powerhouse-for-citizen-science-on-law-and-ethics-2","status":"publish","type":"page","link":"https:\/\/socio-bee.eu\/?page_id=697","title":{"rendered":"The Knowledge Powerhouse for Citizen Science on Law and Ethics"},"content":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”4.21.0″ background_image=”https:\/\/socio-bee.eu\/wp-content\/uploads\/2024\/05\/call-me-fred-uDLtqbbVR4I-unsplash-scaled.jpg” min_height=”636.1px” custom_margin=”||82px|||” global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_text _builder_version=”4.21.0″ header_font=”|800|||||||” header_text_align=”center” header_text_color=”#ffffff” global_colors_info=”{}”]<\/p>\n

The Knowledge Powerhouse for Citizen Science on Law and Ethics<\/span><\/h1>\n

[\/et_pb_text][et_pb_text _builder_version=”4.16″ text_text_color=”#ffffff” text_font_size=”17px” background_color=”rgba(224,153,0,0.2)” text_orientation=”center” custom_padding=”10px|10px|10px|10px|false|false” global_colors_info=”{}”]The Knowledge Powerhouse for Citizen Science on Law and Ethics is part of a task dissemination from SOCIO-BEE and aims to communicate the project\u2019s work as well as existing resources in relation to law and ethics and subsequent lessons learnt to the general public, encouraging the uptake of citizen science, by creating a publicly available knowledge hub hosted on the project\u2019s website. <\/span>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row column_structure=”1_2,1_2″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_text _builder_version=”4.16″ header_font=”|800|||||||” header_text_align=”left” header_text_color=”#e09900″ global_colors_info=”{}”]<\/p>\n

ABOUT THIS POWERHOUSE<\/h1>\n

[\/et_pb_text][et_pb_divider color=”#e09900″ _builder_version=”4.16″ global_colors_info=”{}”][\/et_pb_divider][et_pb_text _builder_version=”4.16″ text_font_size=”17px” global_colors_info=”{}”]The Knowledge Powerhouse is made up of a wide variety of resources, ranging from guidelines to blog posts, policy documents, academic works etc. They are arranged by different thematic categories.<\/p>\n

In this way, we can summarise, compact and expand the existing knowledge base intended for diverse audiences.[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”https:\/\/socio-bee.eu\/wp-content\/uploads\/2022\/09\/wroclaw-g4bb596b33_640.jpg” _builder_version=”4.16″ box_shadow_style=”preset4″ box_shadow_color=”#e09900″ global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row _builder_version=”4.21.0″ global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_text _builder_version=”4.21.0″ header_font=”|800|||||||” header_text_align=”center” header_text_color=”#e09900″ global_colors_info=”{}”]<\/p>\n

WHAT YOU CAN FIND<\/h1>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_4,1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_cta title=”ETHICS” button_url=”https:\/\/socio-bee.eu\/?page_id=486\/#ethics” button_text=”Read more” _builder_version=”4.21.0″ header_font=”|800|||||||” header_font_size=”35px” background_color=”#e06100″ custom_button=”on” button_text_size=”15px” border_radii=”on|10px|10px|10px|10px” box_shadow_style=”preset2″ global_colors_info=”{}”]<\/p>\n

Academic resources
Blog posts and other commentaries
Guidelines
Principles and Codes
Tools<\/p>\n

[\/et_pb_cta][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.21.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_cta title=”GENDER EQUALITY” button_url=”https:\/\/socio-bee.eu\/?page_id=486\/#equality” button_text=”Read more” _builder_version=”4.21.0″ header_font=”|800|||||||” header_font_size=”35px” background_color=”#5a0c1c” custom_button=”on” button_text_size=”16px” border_radii=”on|10px|10px|10px|10px” box_shadow_style=”preset2″ global_colors_info=”{}”]<\/p>\n

Academic resources<\/p>\n

Guidelines<\/p>\n

Blogposts<\/p>\n

[\/et_pb_cta][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_cta title=”LAW” button_url=”https:\/\/socio-bee.eu\/?page_id=486\/#law” button_text=”Read more” _builder_version=”4.21.0″ header_font=”|800|||||||” header_font_size=”35px” background_color=”#E09900″ custom_button=”on” button_text_size=”16px” border_radii=”on|10px|10px|10px|10px” box_shadow_style=”preset2″ global_colors_info=”{}”]<\/p>\n

Academic resources<\/p>\n

Guidelines<\/p>\n

EU case law<\/p>\n

[\/et_pb_cta][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_cta title=”ADDITIONAL RESOURCES” button_url=”https:\/\/socio-bee.eu\/?page_id=486\/#innovation” button_text=”Read more” _builder_version=”4.21.0″ header_font=”|800|||||||” header_text_align=”center” header_font_size=”35px” background_color=”#fc9569″ custom_button=”on” button_text_size=”15px” custom_margin=”|-50px||||” border_radii=”on|10px|10px|10px|10px” box_shadow_style=”preset2″ global_colors_info=”{}”]<\/p>\n

Academic resources, blog posts and other commentaries<\/p>\n

EU projects and documents<\/p>\n

[\/et_pb_cta][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ module_id=”ethics” _builder_version=”4.21.0″ background_color=”rgba(224,97,0,0.1)” global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_text _builder_version=”4.21.0″ text_font_size=”16px” header_font=”|800|||||||” header_text_color=”#5a0c1c” background_color=”rgba(0,0,0,0)” global_colors_info=”{}”]<\/p>\n

ETHICS<\/h1>\n

Academic resources, blog posts and commentaries, principles and codes of ethics, tools and use of innovative technologies<\/p>\n

[\/et_pb_text][et_pb_divider color=”#e09900″ _builder_version=”4.16″ global_colors_info=”{}”][\/et_pb_divider][et_pb_accordion open_toggle_text_color=”#e02b20″ open_toggle_background_color=”#ffffff” closed_toggle_text_color=”#e09900″ icon_color=”#e09900″ use_icon_font_size=”on” _builder_version=”4.21.0″ toggle_text_color=”#e02b20″ global_colors_info=”{}”][et_pb_accordion_item title=”Academic resources” open=”on” open_toggle_text_color=”#e09900″ _builder_version=”4.21.0″ global_colors_info=”{}” toggle_font_size=”20px”]<\/p>\n

General<\/span><\/h3>\n

Baard P and Sandin P, \u2018Principlism and Citizen Science: The Possibilities and Limitations of Principlism for Guiding Responsible Citizen Science Conduct\u2019 (2022) 18 Research Ethics 304 Retrieved from: https:\/\/doi.org\/10.1177\/17470161221116558<\/a>
<\/span><\/p>\n

Brown N, \u2018Research Ethics in a Changing Social Sciences Landscape\u2019 (2023) 19 Research Ethics 157 Retrieved from: https:\/\/www.mdpi.com\/2071-1050\/15\/5\/4496<\/a>
<\/span><\/p>\n

\u2018Citizen science in environmental monitoring: a framework for ethical issues\u2019 (\u00d6sterreich forscht, 21 June 2023) Retrieved from: https:\/\/www.citizen-science.at\/blog\/citizen-science-in-environmental-monitoring-a-framework-for-ethical-issues<\/a>
<\/span><\/p>\n

Constant NL and Hughes J, \u2018Diversifying Citizen Science through the Inclusion of Young People\u2019 (2023) 22 Journal of Science Communication A07 Retrieved from: https:\/\/jcom.sissa.it\/article\/pubid\/JCOM_2202_2023_A07\/<\/a><\/span><\/p>\n

Ethics in Citizen Science David Resnick (Directed by Eterna, 2023) Retrieved from: https:\/\/www.youtube.com\/watch?v=A0ZT6JNDcmY<\/a><\/span><\/p>\n

Ficorilli, A., Maccani, G., Balestrini, M., Biggeri, A., De Marchi, B., Froeling, F., Gignac, F., Grazuleviciene, R., Hoek, G., Kandu\u010d, T., Kocman, D., Righi, V., & Basagana, X. (2021). Investigating the process of ethical approval in citizen science research: The case of Public Health. <\/span>Journal of Science Communication<\/span><\/i>, 20, A04. <\/span>https:\/\/doi.org\/10.22323\/2.20060204<\/span><\/a><\/p>\n

Goodwin, J., & Roberts, L. (2019). Citizen Science Ethics: It\u2019s a Community Thing. <\/span>Narrative Inquiry in Bioethics<\/span><\/i>, <\/span>9<\/span><\/i>(1), 35\u201340. Retrieved from https:\/\/www.researchgate.net\/publication\/332725062_Citizen_Science_Ethics_It%27s_a_Community_Thing<\/a><\/span><\/p>\n

Groot, B., & Abma, T. (2022). Ethics framework for citizen science and public and patient participation in research. <\/span>BMC Medical Ethics<\/span><\/i>, <\/span>23<\/span><\/i>(1), 23. <\/span>https:\/\/doi.org\/10.1186\/s12910-022-00761-4<\/span><\/a><\/p>\n

Ficorilli, A. (2020, September 14). Ethical Aspects of Citizen Science Projects at ECSA 2020 Conference. Cities Health. Retrieved from <\/span>https:\/\/citieshealth.eu\/2020\/09\/14\/ethical-aspects-of-citizen-science-projects-at-ecsa-2020-conference\/<\/span><\/a><\/p>\n

Harwell TA and others, \u2018Is Citizen Science Queering Science? An Exploration of the Personal Dimensions of Engaging LGBTQ+ Citizen Science Volunteers\u2019 (2023) 13 International Journal of Science Education Part B 116 Retrieved from: https:\/\/doi.org\/10.1080\/21548455.2022.2137706<\/a><\/span><\/p>\n

Kasperowski, D., Hagen, N., & Rohden, F. (2022). Ethical boundary work in citizen science: Themes of insufficiency. <\/span>Nordic Journal of Science and Technology Studies<\/span><\/i>. <\/span>https:\/\/doi.org\/10.5324\/njsts.v10i1.4318<\/span><\/a><\/p>\n

Miller-Rushing AJ and others, \u2018Conservation Ethics in the Time of the Pandemic: Does Increasing Remote Access Advance Social Justice?\u2019 (2022) 276 Biological Conservation 109788 Retrieved from: https:\/\/doi.org\/10.1016\/j.biocon.2022.109788<\/a><\/span><\/p>\n

Oberle, K. M., Page, S. A., Stanley, F. K., & Goodarzi, A. A. (2019). A reflection on research ethics and citizen science. <\/span>Research Ethics<\/span><\/i>, <\/span>15<\/span><\/i>(3\u20134), 1\u201310. <\/span>https:\/\/doi.org\/10.1177\/1747016119868900<\/span><\/a><\/p>\n

Patrick-Lake, B., & Goldsack, J. C. (2019). Mind the Gap: The Ethics Void Created by the Rise of Citizen Science in Health and Biomedical Research. <\/span>The American Journal of Bioethics<\/span><\/i>, <\/span>19<\/span><\/i>(8), 1\u20132. <\/span>https:\/\/doi.org\/10.1080\/15265161.2019.1639389<\/span><\/a><\/p>\n

Rasmussen, L. M. (2019). Confronting Research Misconduct in Citizen Science. <\/span>Citizen Science: Theory and Practice<\/span><\/i>, <\/span>4<\/span><\/i>(1), 10. <\/span>https:\/\/doi.org\/10.5334\/cstp.207<\/span><\/a><\/p>\n

Rasmussen, L. M., & Cooper, C. (2019). Citizen Science Ethics. <\/span>Citizen Science: Theory and Practice<\/span><\/i>, <\/span>4<\/span><\/i>(1), 5. <\/span>https:\/\/doi.org\/10.5334\/cstp.235<\/span><\/a><\/p>\n

Reiheld, A., & Gay, P. L. (2019). Coercion, Consent, and Participation in Citizen Science (arXiv:1907.13061). arXiv. <\/span>https:\/\/doi.org\/10.48550\/arXiv.1907.13061<\/span><\/a><\/p>\n

Remmers G and others, \u2018Mind the Relationship: A Multi-Layered Ethical Framework for Citizen Science in Health\u2019 (2023) 25 Etica e Politica 171 Retrieved from: https:\/\/doi.org\/10.13137\/1825-5167\/35356<\/a><\/span><\/p>\n

Resnik, D. B. (2019). Citizen Scientists as Human Subjects: Ethical Issues<\/span>. Citizen Science: Theory and Practice<\/span><\/i>, <\/span>4<\/span><\/i>(1), 11. <\/span>https:\/\/doi.org\/10.5334\/cstp.150<\/span><\/a><\/p>\n

Resnik, D. B., Elliott, K. C., & Miller, A. K. (2015). A framework for addressing ethical issues in citizen science. <\/span>Environmental Science & Policy<\/span><\/i>, <\/span>54<\/span><\/i>, 475\u2013481. Retrieved from <\/span>https:\/\/www.researchgate.net\/publication\/277960199_A_framework_for_addressing_ethical_issues_in_citizen_science<\/span><\/a><\/p>\n

Riesch, H., & Potter, C. (2014). Citizen science as seen by scientists: Methodological, epistemological and ethical dimensions. Retrieved from <\/span>https:\/\/bura.brunel.ac.uk\/handle\/2438\/10337<\/span><\/a><\/p>\n

Riley J and Mason-Wilkes W, \u2018Dark Citizen Science\u2019 (2024) 33 Public Understanding of Science 142 Retrieved from: https:\/\/doi.org\/10.1177\/09636625231203470<\/a><\/span><\/p>\n

Tauginien\u0117, L., Hummer, P., Albert, A., Cigarini, A., & Vohland, K. (2021). Ethical Challenges and Dynamic Informed Consent. In K. Vohland, A. Land-Zandstra, L. Ceccaroni, R. Lemmens, J. Perell\u00f3, M. Retrieved from <\/span>https:\/\/link.springer.com\/chapter\/10.1007\/978-3-030-58278-4_20<\/span><\/a><\/p>\n

<\/h3>\n

Additional resources<\/span><\/i><\/h3>\n

Banks, S., & Brydon-Miller, M. (2018). Ethics in participatory research. In S. Banks & M. Brydon-Miller (Eds.), Banks,\u00a0 S. & Brydon-Miller,\u00a0 M. (Eds.). (2018). Ethics in participatory research for health and social well-being: Cases and commentaries. Abingdon, Oxon: Routledge, pp. 1-30 (pp. 1\u201330). Routledge. <\/span>https:\/\/dro.dur.ac.uk\/26374\/<\/span><\/a><\/p>\n

Bietz, M., Patrick, K., & Bloss, C. (2019). Data Donation as a Model for Citizen Science Health Research. <\/span>Citizen Science: Theory and Practice<\/span><\/i>, <\/span>4<\/span><\/i>(1), 6. <\/span>https:\/\/doi.org\/10.5334\/cstp.178<\/span><\/a><\/p>\n

Bowser, A., Shilton, K., Preece, J., & Warrick, E. (2017). Accounting for Privacy in Citizen Science: Ethical Research in a Context of Openness. Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing, 2124\u20132136. <\/span>https:\/\/doi.org\/10.1145\/2998181.2998305<\/span><\/a><\/p>\n

Brown, P., Morello-Frosch, R., Brody, J. G., Altman, R. G., Rudel, R. A., Senier, L., P\u00e9rez, C., & Simpson, R. (2010). Institutional review board challenges related to community-based participatory research on human exposure to environmental toxins: A case study. <\/span>Environmental Health<\/span><\/i>, <\/span>9<\/span><\/i>(1), 39. <\/span>https:\/\/doi.org\/10.1186\/1476-069X-9-39<\/span><\/a><\/p>\n

Eleta, I., Clavell, G. G., Righi, V., & Balestrini, M. (2019). The Promise of Participation and Decision-Making Power in Citizen Science. <\/span>Citizen Science: Theory and Practice<\/span><\/i>, <\/span>4<\/span><\/i>(1), 8. <\/span>https:\/\/doi.org\/10.5334\/cstp.171<\/span><\/a><\/p>\n

Flicker, S., Travers, R., Guta, A., McDonald, S., & Meagher, A. (2007). Ethical Dilemmas in Community-Based Participatory Research: Recommendations for Institutional Review Boards. <\/span>Journal of Urban Health<\/span><\/i>, <\/span>84<\/span><\/i>(4), 478\u2013493. <\/span>https:\/\/doi.org\/10.1007\/s11524-007-9165-7<\/span><\/a><\/p>\n

Guerrini, C. J., Crossnohere, N. L., Rasmussen, L., & Bridges, J. F. P. (2021). A best\u2013worst scaling experiment to prioritize concern about ethical issues in citizen science reveals heterogeneity on people-level v. Data-level issues. <\/span>Scientific Reports<\/span><\/i>, <\/span>11<\/span><\/i>(1), 19119. <\/span>https:\/\/doi.org\/10.1038\/s41598-021-96743-4<\/span><\/a><\/p>\n

Hansen, J. S., Gadegaard, S., Hansen, K. K., Larsen, A. V., M\u00f8ller, S., Thomsen, G. S., & Holmstrand, K. F. (2021). Research Data Management Challenges in Citizen Science Projects and Recommendations for Library Support Services. A Scoping Review and Case Study. <\/span>Data Science Journal<\/span><\/i>, <\/span>20<\/span><\/i>(1), 25. <\/span>https:\/\/doi.org\/10.5334\/dsj-2021-025<\/span><\/a><\/p>\n

Lynn, S. J., Kaplan, N., Newman, S., Scarpino, R., & Newman, G. (2019). Designing a Platform for Ethical Citizen Science: A Case Study of CitSci.org. <\/span>Citizen Science: Theory and Practice<\/span><\/i>, <\/span>4<\/span><\/i>(1), 14. <\/span>https:\/\/doi.org\/10.5334\/cstp.227<\/span><\/a><\/p>\n

Majumder, M. A., & McGuire, A. L. (2020). Data Sharing in the Context of Health-Related Citizen Science. <\/span>Journal of Law, Medicine & Ethics<\/span><\/i>, <\/span>48<\/span><\/i>(S1), 167\u2013177. Retrieved from https:\/\/journals.sagepub.com\/doi\/10.1177\/1073110520917044<\/span><\/p>\n

Roy, S., & Edwards, M. (2019). Citizen Science During the Flint, Michigan Federal Water Emergency: Ethical Dilemmas and Lessons Learned. <\/span>Citizen Science: Theory and Practice<\/span><\/i>, <\/span>4<\/span><\/i>(1), 12. <\/span>https:\/\/doi.org\/10.5334\/cstp.154<\/span><\/a><\/p>\n

Scheibner, J., Jobin, A., & Vayena, E. (2021). Ethical Issues with Using Internet of Things Devices in Citizen Science Research: A Scoping Review. <\/span>Frontiers in Environmental Science<\/span>, <\/span>9<\/span>, 629649. <\/span>https:\/\/doi.org\/10.3389\/fenvs.2021.629649<\/span><\/a>\u00a0<\/span><\/i><\/p>\n

Sorensen, A. E., Jordan, R. C., LaDeau, S. L., Biehler, D., Wilson, S., Pitas, J.-H., & Leisnham, P. T. (2019). Reflecting on Efforts to Design an Inclusive Citizen Science Project in West Baltimore. <\/span>Citizen Science: Theory and Practice,<\/span><\/i> 4<\/span><\/i>(1), 13. <\/span>https:\/\/doi.org\/10.5334\/cstp.170<\/span><\/a><\/p>\n

[\/et_pb_accordion_item][et_pb_accordion_item title=”Blog posts and other commentaries” open_toggle_text_color=”#e09900″ _builder_version=”4.21.0″ global_colors_info=”{}” toggle_font_size=”20px” open=”off”]<\/p>\n

Berti Suman, A., & Schade, S. (2022, February, 23). Our visual consent forms now out as Creative Commons. Retrieved from <\/span>https:\/\/sensingforjustice.webnode.it\/l\/our-visual-consent-forms-now-out-as-creative-commons\/<\/span><\/a><\/p>\n

Biggeri, A. (n.d.). Un\u2019etica per ogni pratica scientifica, anche per quella dei cittadini. <\/span>[An ethics for every scientific practice, even for that of citizens]<\/span><\/i> www.epiprev.it<\/span><\/i>. Retrieved, from <\/span>https:\/\/epiprev.it\/4451<\/span><\/a><\/p>\n

Citizen Science Projects Surging, But Often Lack IRB Ethical Oversight (n.d.). Relias Media. Retrieved from <\/span>https:\/\/www.reliasmedia.com\/articles\/149105-citizen-science-projects-surging-but-often-lack-irb-ethical-oversight<\/span><\/a><\/p>\n

Didio, A. (n.d.). Assent from & Informative material for minors. <\/span>Arise Initiative <\/span><\/i>Retrieved from <\/span>https:\/\/www.ariseinitiative.org\/wp-content\/uploads\/2020\/07\/Didio_Assent-form-Informative-material-for-minors.pdf<\/span><\/a><\/p>\n

\u2018Ethics and Technology | Sociales y Humanas | Deusto\u2019 Retrieved from: https:\/\/www.deusto.es\/en\/home\/we-are-deusto\/university-centres\/institutes\/centre-for-applied-ethics\/ethics-by-areas\/ethics-technology<\/a><\/span><\/p>\n

CSA\u00a0 WEBINAR Citizen Science Ethics 101 (2018, September, 18). <\/span>Citizen Science Association<\/span><\/i>. Retrieved from <\/span>https:\/\/www.youtube.com\/watch?v=Kj3udfvtFdY<\/span><\/a><\/p>\n

CSA WEBINAR Situation Assessment and Stakeholder Analysis for Citizen Science (2018, November 30). <\/span>Citizen Science Association<\/span><\/i>. Retrieved from <\/span>https:\/\/www.youtube.com\/watch?v=1w2f70N4sao&t=11s<\/span><\/a><\/p>\n

Ficorilli, A. (n.d.). Quale etica per la citizen science? <\/span>[What ethics for citizen science?]<\/span><\/i> www.epiprev.it.<\/span><\/i> Retrieved from <\/span>https:\/\/epiprev.it\/4452<\/span><\/a><\/p>\n

Gilbert, S. (2019, October 21). Citizen Science: Potential Benefits and Ethical Challenges. The Hastings Center. <\/span>https:\/\/www.thehastingscenter.org\/citizen-science-potential-benefits-and-ethical-challenges\/<\/span><\/a><\/p>\n

Herman, J. (2020, November 2). An Ethical Code for Citizen Science? Retrieved from <\/span>http:\/\/justice-everywhere.org\/democracy\/tbd\/<\/span><\/a><\/p>\n

Rasmussen, L. (n.d.). Filling the \u2018Ethics Gap\u2019 in Citizen Science Research: A Workshop Report. 12. <\/span>https:\/\/www.niehs.nih.gov\/research\/supported\/translational\/peph\/webinars\/ethics\/rasmussen_508.pdf<\/span><\/a><\/p>\n

Stone, J. (n.d.). Of Citizen Science, Ethics, and IRBs the view from Science Online. Scientific American Blog Network. Retrieved from <\/span>https:\/\/blogs.scientificamerican.com\/molecules-to-medicine\/of-citizen-science-ethics-and-irbs-the-view-from-science-online\/<\/span><\/a><\/p>\n

Tribur, M. (2019, October 3). What Makes for Ethical Citizen Science Research? Eos. <\/span>http:\/\/eos.org\/articles\/what-makes-for-ethical-citizen-science-research<\/span><\/a><\/p>\n

Ficorilli, A. (2020, May 29). What ethics for citizen science? <\/span>Cities Health<\/span><\/i>. Retrieved from <\/span>https:\/\/citieshealth.eu\/2020\/05\/29\/what-ethics-for-citizen-science\/<\/span><\/a><\/p>\n

Network of the National Library of Medicine [NNLM] (Director). (2021, May 14). Ethical Considerations In Citizen Science with Dr. Rasmussen. <\/span>https:\/\/www.youtube.com\/watch?v=7ZKBtrGUaEU<\/span><\/a><\/p>\n

[\/et_pb_accordion_item][et_pb_accordion_item title=”Guidelines” open_toggle_text_color=”#e09900″ _builder_version=”4.21.0″ global_colors_info=”{}” toggle_font_size=”20px” open=”off”]<\/p>\n

General<\/span><\/h3>\n

Citizen\u2019s Guide to Open Data<\/span><\/a><\/p>\n

International Compilation of Human Research Standards<\/span><\/a><\/p>\n

Ethics and privacy guidelines by SCIVIL<\/span><\/a> (Knowledge center for citizen science in Flanders)<\/span><\/p>\n

Citizen science at universities: Trends, guidelines and recommendations<\/span><\/a><\/p>\n

\u2018Citizen Science – Research – University of St Andrews\u2019 Retrieved from: https:\/\/www.st-andrews.ac.uk\/research\/integrity-ethics\/humans\/ethical-guidance\/citizen-science\/<\/a> accessed 18 April 2024<\/span><\/p>\n

\u2018Data Ethics Toolkit\u2019 (Association for Advancing Participatory Sciences) Retrieved from: https:\/\/participatorysciences.org\/resources\/data-ethics\/<\/a>
<\/span><\/p>\n

Hultquist C and others, \u2018Editorial: Open Citizen Science Data and Methods\u2019 (2022) 4 Frontiers in Climate Retrieved from: https:\/\/www.frontiersin.org\/articles\/10.3389\/fclim.2022.943534<\/a>
<\/span><\/p>\n

Soacha K, Cardenas A and Alvarez A, \u2018D3.1 Best Practices For Collaborative Development Of Citizen Science Data Infrastructures\u2019 Retrieved from: https:\/\/zenodo.org\/records\/10635857<\/a>
<\/span><\/p>\n

Wiarda and others, \u2018Ethics Framework and Guidelines for Participatory Processes in the Activities of Research Funding Organizations\u2019 Retrieved from: https:\/\/zenodo.org\/records\/8089673<\/a>
<\/span><\/p>\n

EU<\/span><\/h3>\n

European Union Agency for Cybersecurity. (2021). Data pseudonymisation: Advanced techniques and use cases\u202f: technical analysis of cybersecurity measures in data protection and privacy. Publications Office. <\/span>https:\/\/data.europa.eu\/doi\/10.2824\/860099<\/span><\/a><\/p>\n

European Union Agency for Cybersecurity. (2022a). Data protection engineering: From theory to practice. Publications Office. <\/span>https:\/\/data.europa.eu\/doi\/10.2824\/09079<\/span><\/a><\/p>\n

European Union Agency for Cybersecurity. (2022b). Deploying pseudonymisation techniques: The case of health sector. Publications Office. <\/span>https:\/\/data.europa.eu\/doi\/10.2824\/092874<\/span><\/a><\/p>\n

Schade, S., & Tsinaraki, C. (2016, May 18). Survey report: Data management in Citizen Science projects. JRC Publications Repository. <\/span>https:\/\/doi.org\/10.2788\/539115<\/span><\/a><\/p>\n

European Network and Information Security Agency. (2019). Pseudonymisation techniques and best practices: Recommendations on shaping technology according to data protection and privacy provisions. Publications Office. <\/span>https:\/\/data.europa.eu\/doi\/10.2824\/247711<\/span><\/a><\/p>\n

[\/et_pb_accordion_item][et_pb_accordion_item title=”Principles and codes of ethics” open_toggle_text_color=”#e09900″ _builder_version=”4.21.0″ global_colors_info=”{}” toggle_font_size=”20px” open=”off”]<\/p>\n

Association for Advancing Participatory Sciences Code of Conduct. Retrieved from: https:\/\/participatorysciences.org\/code-of-conduct\/<\/a><\/span><\/a><\/p>\n

Beyond Sabor Code of Ethics<\/span><\/a>\u00a0<\/span><\/p>\n

CARE Principles and Guidelines for Community-University Research Partnerships<\/span><\/a><\/p>\n

ECSA 10 Principles of Citizen Science<\/span><\/a>\u00a0<\/span><\/p>\n

[\/et_pb_accordion_item][et_pb_accordion_item title=”Tools” open_toggle_text_color=”#e09900″ _builder_version=”4.16″ global_colors_info=”{}” toggle_font_size=”20px” open=”off”]Basic Research Concepts<\/span><\/a> (Office of Research Integrity, USA)<\/span><\/p>\n

EU-Citizen.Science (2022, March 21). Basic regulations and ethics for citizen science. Retrieved from <\/span>https:\/\/eu-citizen.science\/resource\/321<\/span><\/a><\/p>\n

Research ethics<\/span><\/a> (ACTION Project)<\/span><\/p>\n

PANELFIT. (n.d.) Main Tools and Actions. <\/span>https:\/\/guidelines.panelfit.eu\/the-gdpr\/main-tools-and-actions\/<\/span><\/a><\/p>\n

Research Ethics Online Training (World Health Organisation)<\/span><\/a>[\/et_pb_accordion_item][et_pb_accordion_item title=”Use of innovative technologies” open_toggle_text_color=”#e09900″ _builder_version=”4.21.0″ global_colors_info=”{}” toggle_font_size=”20px” open=”off”]<\/p>\n

Artificial Intelligence<\/span><\/h3>\n

European Commission (2019, April 8). Ethics guidelines for trustworthy AI. Retrieved from <\/span>https:\/\/digital-strategy.ec.europa.eu\/en\/library\/ethics-guidelines-trustworthy-ai<\/span><\/a><\/p>\n

Ceccaroni, L., Bibby, J., Roger, E., Flemons, P., Michael, K., Fagan, L., & Oliver, J. L. (2019). Opportunities and Risks for Citizen Science in the Age of Artificial Intelligence. <\/span>Citizen Science: Theory and Practice<\/span><\/i>, <\/span>4<\/span><\/i>(1), 29. <\/span>https:\/\/doi.org\/10.5334\/cstp.241<\/span><\/a><\/p>\n

Drones<\/span><\/h3>\n

Communication on countering potential threats posed by drones COM(2023) 659 final https:\/\/eur-lex.europa.eu\/legal-content\/EN\/TXT\/?uri=CELEX:52023DC0659
<\/span><\/p>\n

Commission Implementing Regulation (EU) 2019\/947 of 24 May 2019 on the rules and procedures for the operation of unmanned aircraft C\/2019\/3824 https:\/\/eur-lex.europa.eu\/legal-content\/EN\/TXT\/?uri=CELEX%3A32019R0947
<\/span><\/p>\n

Commission Delegated Regulation (EU) 2019\/945 of 12 March 2019 on unmanned aircraft systems and on third-country operators of unmanned aircraft systems C\/2019\/1821 https:\/\/eur-lex.europa.eu\/eli\/reg_del\/2019\/945\/oj
<\/span><\/p>\n

Communication from the Commission to the Council and the European Parliament COM(2023) 659 final on countering potential threats posed by drones https:\/\/eur-lex.europa.eu\/legal-content\/EN\/TXT\/?uri=CELEX:52023DC0659
<\/span><\/p>\n

EASA (2022, September 28). Easy Access Rules for Unmanned Aircraft Systems (Regulation (EU) 2019\/947 and Regulation (EU) 2019\/945)\u2014Revision from September 2021\u2014Available in online format. Retrieved from <\/span>https:\/\/www.easa.europa.eu\/en\/document-library\/easy-access-rules\/easy-access-rules-unmanned-aircraft-systems-regulation-eu<\/span><\/a><\/p>\n

EASA (2020, April 6). EASA publishes first rules for safe drone operations in Europe\u2019s cities. Retrieved\u00a0 from <\/span>https:\/\/www.easa.europa.eu\/en\/newsroom-and-events\/press-releases\/easa-publishes-first-rules-safe-drone-operations-europes-cities<\/span><\/a><\/p>\n

EASA (2021, March 3). Drones Information Notices\u2014Classes 0-6. Retrieved from <\/span>https:\/\/www.easa.europa.eu\/en\/document-library\/general-publications\/drones-information-notices<\/span><\/a><\/p>\n

Drones (UAS). (n.d.). <\/span>EASA<\/span><\/i>. Retrieved from <\/span>https:\/\/www.easa.europa.eu\/en\/the-agency\/faqs\/drones-uas<\/span><\/a><\/p>\n

\u2018New EU Rules on Dedicated Airspace for Drones Enter into Force – European Commission\u2019 Retrieved from: https:\/\/transport.ec.europa.eu\/news-events\/news\/new-eu-rules-dedicated-airspace-drones-enter-force-2023-01-26_en
<\/span><\/p>\n

\u2018Remote Identification Will Become Mandatory for Drones across Europe | EASA\u2019 (28 November 2023) Retrieved from: https:\/\/www.easa.europa.eu\/en\/document-library\/general-publications\/remote-identification-will-become-mandatory-drones-across
<\/span><\/p>\n

Wearables<\/span><\/h3>\n

European Commission (2018, February 26). Feedback from stakeholders on the Smart Wearables reflection and orientation paper. Retrieved from <\/span>https:\/\/digital-strategy.ec.europa.eu\/en\/news\/feedback-stakeholders-smart-wearables-reflection-and-orientation-paper<\/span><\/a><\/p>\n

ENISA (2019, November 19). Good Practices for Security of IoT – Secure Software Development Lifecycle. [Report\/Study]. Retrieved from <\/span>https:\/\/www.enisa.europa.eu\/publications\/good-practices-for-security-of-iot-1<\/span><\/a><\/p>\n

ENISA (2020, November 9). Guidelines for Securing the Internet of Things. [Report\/Study]. Retrieved from <\/span>https:\/\/www.enisa.europa.eu\/publications\/guidelines-for-securing-the-internet-of-things<\/span><\/a><\/p>\n

[\/et_pb_accordion_item][\/et_pb_accordion][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ module_id=”equality” _builder_version=”4.21.0″ background_color=”rgba(90,12,28,0.1)” global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_text _builder_version=”4.21.0″ text_font_size=”16px” header_font=”|800|||||||” header_text_color=”#5a0c1c” background_color=”rgba(0,0,0,0)” hover_enabled=”0″ global_colors_info=”{}” custom_padding=”||1px|||” sticky_enabled=”0″]<\/p>\n

GENDER EQUALITY<\/h1>\n

General information, guidelines, and blogposts on gender equality<\/p>\n

[\/et_pb_text][et_pb_divider color=”#e09900″ _builder_version=”4.16″ global_colors_info=”{}”][\/et_pb_divider][et_pb_accordion open_toggle_text_color=”#e02b20″ closed_toggle_text_color=”#e09900″ _builder_version=”4.21.0″ toggle_text_color=”#e02b20″ global_colors_info=”{}”][et_pb_accordion_item title=”Academic resources” open=”off” open_toggle_text_color=”#e09900″ _builder_version=”4.21.0″ global_colors_info=”{}” toggle_font_size=”20px”]<\/p>\n

European Commission, Directorate-General for Research and Innovation, Warin, C., Delaney, N., Tornasi, Z., Citizen science and citizen engagement \u2013 Achievements in Horizon 2020 and recommendations on the way forward, Delaney, N.(editor), Tornasi, Z.(editor), Publications Office, 2020. Retrieved from https:\/\/data.europa.eu\/doi\/10.2777\/05286<\/a><\/span><\/p>\n

Gawronska-Nowak, B., Lis, P., Zadorozhna, O., & Zarzycka, A. (2023). Profiling European citizen scientist: Evidence from Poland. Journal of International Studies, 16(4), 281-295. Retrieved from: https:\/\/jois.eu\/files\/18_jis_Gawronska-Nowak%20et%20al.pdf<\/a><\/span><\/p>\n

Ibrahim, K., Khodursky, S., & Yasseri, T. (2021). Gender imbalance and spatiotemporal patterns of contributions to citizen science projects: the case of zooniverse. Frontiers in Physics, 9, 650720. Retrieved from: https:\/\/www.frontiersin.org\/articles\/10.3389\/fphy.2021.650720\/full<\/a><\/span><\/p>\n

J\u00f6nsson, M., Kasperowski, D., Coulson, S.J. et al. Inequality persists in a large citizen science programme despite increased participation through ICT innovations. Ambio 53, 126\u2013137 (2024). Retrieved from: https:\/\/doi.org\/10.1007\/s13280-023-01917-1<\/a><\/span><\/p>\n

<\/span><\/a><\/p>\n

[\/et_pb_accordion_item][et_pb_accordion_item title=”Guidelines” open_toggle_text_color=”#e09900″ _builder_version=”4.21.0″ global_colors_info=”{}” toggle_font_size=”20px” open=”on”]<\/p>\n

Gender Equality in Academia and Research – GEAR tool. Retrieved from: https:\/\/eige.europa.eu\/gender-mainstreaming\/toolkits\/gear\/horizon-europe-gep-criterion?language_content_entity=en<\/a><\/p>\n

Horizon Europe Guidance on Gender Equality Plans. Retrieved from: https:\/\/gender-spear.eu\/assets\/content\/Horizon%20Europe%20Guidance%20on%20GEP_en.pdf<\/a><\/p>\n

RRI toolkit on Gender Equality. Retrieved from: https:\/\/rri-tools.eu\/gender-equality<\/a><\/p>\n

Science Europe practical Guide to improving gender equality in research Organizations. Retrieved from: https:\/\/www.fosteropenscience.eu\/node\/2099<\/a><\/p>\n

[\/et_pb_accordion_item][et_pb_accordion_item title=”Blogposts” open_toggle_text_color=”#E09900″ _builder_version=”4.21.0″ _module_preset=”default” global_colors_info=”{}” toggle_level=”h5″ toggle_font_size=”20px” open=”off”]<\/p>\n

Kimura C and Marks A, \u2018Bridging the Divide: How Citizen Science Can Help Narrow the Gender Data Gap\u2019 (TReNDS<\/em>, 8 March 2021). Retrieved from: https:\/\/www.sdsntrends.org\/blog\/citizenscienceandgenderdata<\/a><\/span><\/p>\n

SOCIO-BEE Inclusion Checklist: Pioneering Inclusion and Gender Equality in Citizen. Retrieved from: https:\/\/socio-bee.eu\/?p=1440<\/a><\/span><\/p>\n

[\/et_pb_accordion_item][\/et_pb_accordion][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ module_id=”law” _builder_version=”4.21.0″ background_color=”rgba(252,149,105,0.1)” link_option_url=”#innovation” global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_text _builder_version=”4.16″ text_font_size=”16px” header_font=”|800|||||||” header_text_color=”#5a0c1c” background_color=”rgba(0,0,0,0)” global_colors_info=”{}”]<\/p>\n

LAW<\/h1>\n

General legal information, case studies, case law, citizen science and data practices[\/et_pb_text][et_pb_divider color=”#e09900″ _builder_version=”4.16″ global_colors_info=”{}”][\/et_pb_divider][et_pb_accordion open_toggle_text_color=”#e02b20″ closed_toggle_text_color=”#e09900″ _builder_version=”4.21.0″ toggle_text_color=”#e02b20″ global_colors_info=”{}”][et_pb_accordion_item title=”Academic resources” open=”on” open_toggle_text_color=”#e09900″ _builder_version=”4.21.0″ global_colors_info=”{}” toggle_font_size=”20px”]<\/p>\n

General<\/span><\/h3>\n

Berti Suman A and Alblas E, \u2018Exploring Citizen Science over Time: Sensing, Technology and the Law\u2019 (2023) 15 Sustainability Retrieved from: https:\/\/www.mdpi.com\/2071-1050\/15\/5\/4496<\/a><\/span><\/p>\n

Champion, S. (n.d.). Internet of Things Devices, Citizen Science Research and the Right to Science: Ethical and Legal Issues. HIIG. Retrieved from <\/span>https:\/\/www.hiig.de\/publication\/internet-of-things-devices-citizen-science-research-and-the-right-to-science\/<\/span><\/a><\/p>\n

Citizen Science Association (n.d.). Research Articles & Case Studies.\u00a0 Google Docs. Retrieved from <\/span>https:\/\/docs.google.com\/document\/d\/1v6sJkRfrzEoeqyRfcRmSW9McZUi7-fGdQtTvBOzSwDA\/edit?usp=embed_facebook<\/span><\/a><\/p>\n

Hawe P and others, \u2018The Risk Management Practices of Health Research Ethics Committees May Undermine Citizen Science to Address Basic Human Rights\u2019 (2022) 15 Public Health Ethics 194 Retrieved from: https:\/\/doi.org\/10.1093\/phe\/phab029
<\/span><\/p>\n

Kotiuk I, Weiss A and Taddei U, \u2018Does the European Convention on Human Rights Guarantee a Human Right to Clean and Healthy Air? Litigating at the Nexus between Human Rights and the Environment \u2013 the Practitioners\u2019 Perspective\u2019 (2022) 13 Journal of Human Rights and the Environment 122 Retrieved from: https:\/\/doi.org\/10.4337\/jhre.2022.00.04
<\/span><\/p>\n

Lang M and others, \u2018Crowdsourcing Smartphone Data for Biomedical Research: Ethical and Legal Questions\u2019 (2023) 9 DIGITAL HEALTH 20552076231204428 Retrieved from: https:\/\/doi.org\/10.4337\/jhre.2022.00.04
<\/span><\/p>\n

Lutman K and Strojan L, \u2018State Liability for Health Damage Caused by Excessive Air Pollution: Constitutional and Private Law Aspects\u2019 (2023) 18 Journal of Agricultural and Environmental Law 31 Retrieved from: https:\/\/heinonline.org\/HOL\/P?h=hein.journals\/jagrev18&i=31
<\/span><\/p>\n

Misonne, D. (2021). The emergence of a right to clean air: Transforming European Union law through litigation and citizen science. <\/span>Review of European, Comparative & International Environmental Law<\/span><\/i>, <\/span>30<\/span><\/i>(1), 34\u201345. Retrieved from <\/span>https:\/\/researchnow.flinders.edu.au\/en\/publications\/internet-of-things-devices-citizen-science-research-and-the-right<\/span><\/a><\/p>\n

Pierce, R., & Evram, M. (2022). Getting it right: Implementing data protection in citizen science research. <\/span>Insights<\/span><\/i>, <\/span>35<\/span><\/i>(0), 2. <\/span>https:\/\/doi.org\/10.1629\/uksg.538<\/span><\/a><\/p>\n

Purtova N and Pierce RL, \u2018Citizen Scientists as Data Controllers: Data Protection and Ethics Challenges of Distributed Science\u2019 (2024) 52 Computer Law & Security Review 105911 Retrieved from: https:\/\/www.sciencedirect.com\/science\/article\/pii\/S0267364923001218<\/a><\/span><\/p>\n

Quinn, P. (2018). Is the GDPR and Its Right to Data Portability a Major Enabler of Citizen Science? <\/span>Global Jurist<\/span><\/i>, <\/span>18<\/span><\/i>(2). Retrieved from <\/span>https:\/\/www.researchgate.net\/publication\/325635784_Is_the_GDPR_and_Its_Right_to_Data_Portability_a_Major_Enabler_of_Citizen_Science<\/span><\/a><\/p>\n

Scassa, T., & Chung H. (2015). <\/span>Managing Intellectual Property Rights in Citizen Science: A Guide for Researchers and Citizen Scientists<\/span><\/i>. Washington, DC: Woodrow Wilson International Center for Scholars. Retrieved from <\/span>https:\/\/www.wilsoncenter.org\/publication\/managing-intellectual-property-rights-citizen-science-guide-for-researchers-and-citizen<\/span><\/a><\/p>\n

Additional resources<\/span><\/h3>\n

Dove, E. S., & Chen, J. (2020). To What Extent Does the EU General Data Protection Regulation (GDPR) Apply to Citizen Scientist-Led Health Research with Mobile Devices? <\/span>The Journal of Law, Medicine & Ethics<\/span><\/i>, <\/span>48<\/span><\/i>(1_suppl), 187\u2013195. Retrieved from <\/span>https:\/\/journals.sagepub.com\/doi\/10.1177\/1073110520917046<\/span><\/a><\/p>\n

Quinn, P. (2021). Research under the GDPR \u2013 a level playing field for public and private sector research? <\/span>Life Sciences, Society and Policy<\/span><\/i>, <\/span>17<\/span><\/i>(1), 4. <\/span>https:\/\/doi.org\/10.1186\/s40504-021-00111-z<\/span><\/a><\/p>\n

[\/et_pb_accordion_item][et_pb_accordion_item title=”Guidelines” open_toggle_text_color=”#e09900″ _builder_version=”4.21.0″ global_colors_info=”{}” toggle_font_size=”20px” open=”off”]<\/p>\n

EU<\/span><\/h3>\n